Israel Association Of Rare Diseases (Eitan)

We are an umbrella group for 22 support groups for families with rare
diseases in Israel.  We currently represent the following diseases,
conditions, or syndromes:
Huntington
Williams Syndrome
Prader-Willi Syndrome
Di-George Syndrome
Citrolenemia
S.M.A. - Verding Hofman
Xeroderma Pigmentosum
Rubinstein - rBy
Dysautonomia
Rett
V.W.D. - Von Willebrand Disease
Goache
MSUD - Maple Syrop Urine Disease
Exoderma Dysplasia
Sotus
Canavan
Beckwith Wiedemann
Adrenoleukodystrophy
Angelman
Tuberous Sclerosis
Muscular Dystrophy
Crouzon's Syndrome

We welcome contacts from people or groups around the world with advice
or questions about these conditions.
We also encourage people with other rare diseases in Israel to contact us
so that we can include you in our representations.

Our e-mail address is:dichek@netvision.net.il