Re: hi

James Lubin (jlubin(AT)eskimo.com)
Tue, 10 Sep 1996 12:16:11 -0700

Thanks for passing on the info about this list.

I also have a trach and use the PLV-100. I tried the LP-6 once but couldn't
get use to the sound. The PLV-100 is very quiet. I am totally vent
dependent due to acute transverse myelitis.

I may have allergies now. I found that the past month when the weather was
warm and we had the windows open, I needed to be suctioned quite a bit
more, 6-8 times a night. I sometimes fall asleep while being suctioned.

At 10:11 PM 9/8/96 -0500, Annette Hanna wrote:
>I was curious as to what type of vents everyone is using. I am currently
>using a PLV 100. I have a permenant trach. When diagnosed PPS my
>pulmonologist tried a CPAP and a BiPAP machine but I just couldn't tolerate
>the mask over my face. How many of the lists people use trach vs. the mask.
>
>Also people with trach are there more times during particular periods when
>you have to suction? I can go for 2 mths and sleep soundly with the vent
>and then I have weeks were my vent alarm beeps constantly because of mucus.
>Talk about sleep deprivation. I am going thru a period of sleepless nights.
>Will go to the doctor on Wednesday to see what is going on with my lungs.
>
>A quick note to Jim...I post a message on the COPD BB via Prodigy about the
>vent group and with the email list that I belong to for Post polio syndrome.
>Hopefully you can get a few more additions.
>
>Take care to all...
>
>Annette Hanna
>nete1(AT)midamer.net

----
Jim Lubin jlubin(AT)eskimo.com
Bothell, WA, USA http://www.eskimo.com/~jlubin
Fax: +1 206 483 0215 ftp://ftp.eskimo.com/u/j/jlubin
disAbility Resources: http://www.eskimo.com/~jlubin/disabled