What kind of support services do you currently receive and/or did you
receive when you were younger? Our new insurance managed care is demanding
that Kristen's home nursing support be reduced from 7 to 3 nights/week. My
husband and I work full time and have two other children with significant
needs as well. Any suggestions on how to safely care for Krsiten ie be
awake of hypoxic insult, (no pulse ox) need for nebs (can't hear her over
sound of vent from our room), address apneas and SLEEP? HELP!!!
Joanne Kocourek
The University of Chicago
jskocour(AT)midway.uchicago.edu