Re: Hello
4agoodtime (chill(AT)web-ster.com)
Sun, 13 Apr 97 17:24 PDT
At 04:39 PM 4/13/97 -0500, you wrote:
>At 02:07 PM 4/13/97 -0400, you wrote:
>>Hi everyone,
>>
>>I am sort of going to try to as they say, kill 2 birds with one stone, but
>>why anyone would want to kill a bird is beyond me. :) I would like to
>>introduce myself and respond to my friend Annette's question at the same
>>time. Annette was the one who told me about the list and I am really excited
>>about it.
>>
>>My name is Sharyl Teeters aka WickyT or actually, my nickname is just Wicky,
>>but it was already taken as a screen name. I am 45 yrs. old, married with
>>one son and live in Southern Ohio. I use the Lifecare 100 ventilator at night
>>only. I have been trached and on the vent since March of last year. I have
>>noticed that most of the folks seem to have PPS. I have a combination of
>>scoliosis(curve of the spine), COPD, and severe sleep apnea. I also used
>>oxygen 24 hours a day. I am able to get around on my own except when we go
>>somewhere that involves a lot of walking, then I use a wheelchair.
>>
>>In answer to Annette's question, I do my own trach care. My husband suctions
>>me, however I don't need to very often. I have to use a nebulizer for
>>breathing treatments due to my COPD and it usually loosens the secretions
>>until I can cough them up. I change my own circuits usually. My husband and
>>son both help me with my tanks, etc. We pitch in together to try to keep the
>>household going. I can do some house work, but not all. I would like to have
>>someone come in, but I can never seem to find anyone! Maybe cause I have so
>>many cats! :)
>>
>>Again, this list really excites me, sometimes I have felt like I was the only
>>person in the world with one of these darn things. One question that I have,
>>do the rest of you have oxygen attached to your vents, or do they just work
>>with regular air? Please excuse my ignorance.
>>
>>Sincerely,
>>
>>Sharyl aka Wicky
>
>
>Sharyl...
>
>It is good to see that you signed on....as for your question about oxygen.
>I currently don't use oxygen with the vent. For my specific condition
>oxygen isn't the best thing. I just need assistance with tired lung muscles
>at the end of the day.
>
>I appreciate everyone writing concerning their circumstance with PCA's,
>caregivers, etc. I was just curious. At the moment DORS- Department of
>Rehab Services gives me assistance for attendent care. I also have my
>boyfriend assist me with care...but it is nice to have others to help to
>lessen the strain of having a close member of the family do all the work.
>
>Annette Hanna
>nete1(AT)midwest.net
>
hello, my name is Bill Hinsvark. I'm a C-2, C-3 vent dependent quad. I
don't use oxygen with my vent which is also a plv 100. I usually put saline
down my trake at night and use a nebulize at night to clear secretions. I
usually only get suctioned twice a week. I'm also grateful for the
information provided here.
Right now I'm trying to switch from nurses to CNA for most of my care. But
it seems that you have to choose between one or the other for it to be
covered. I would be interested in finding out more about these PCA. Thank
you.>