Re: NON INVASIVE VENTILATION
Valerie Brew-Parrish (brew-parrish(AT)juno.com)
Fri, 19 Sep 1997 10:45:57 -0500
Hello Doctor,
I am thrilled you are so interested in non-invasive ventilation, which IS
the type I use. Dr. Bach is right on target with what he has told you. I
am a polio survivor, and the majority of polio survivors utilize
non-invasive ventilation. I use a plv-100. My doctor, Oscar Schwartz, is
an authority like Dr. Bach on non-invasive ventilation. Oscar made me a
mouth piece out of scuba (diving equipment). I plop the mouth-piece in
and breathe all night. My friend, Dr. Ronald Doneff, uses an electric
wheelchair for mobility, has little use of his arms, and he uses
non-invasive ventilation 24 hrs. a day. He uses a bantam ventilator
during the day. When he speaks, he takes the hose and mouth-piece out of
his mouth and talks between breaths. At night he sleeps in the tank, or
iron-lung. Dr. Doneff has had a thriving medical practice for 30 yrs. He
contracted polio while he was a resident at Indiana School of Medicine. I
asked him to give a speech to the polio survivor group I sponsored. Most
in the group were minimally disabled by polio, but oh were they on their
pity pots. Dr. Doneff proves, anything can be done despite disability.
The other physicians that you can network with is my doctor, Oscar
Schwartz. He probably sees most of the respiratory polio survivors in the
midwest section of the U.S. His phone number is: 314-645-8177; Another
great respiratory doctor and my dear friend, is Dr. Allen Goldberg. Allen
has traveled throughout Europe (France) studying non-invasive
ventilation. He too has written extensively on this subject. In fact, one
of his articles was about me in CHEST. He is also a good friend of Dr.
Bach's. Allen works at Loyola Hosp. in Chicago. His number is:
708-327-9067. The other doctor you would enjoy knowing is Dr. Auguta
Alba. She works at Goldwater Memorial Hospital in New York. Her phone #
is: 212-318-4500. She has a web pg. that I found the other day by
searching ventilator users. Her article talks about non-invasive
ventilation. She taught a workshop in May that I attended about
glassopharageal breathing. (excuse my spelling) Anyway, polio survivors
refer to the technique as "frog breathing." Say the word "GULP" A FEW
TIMES and quickly swallow the air. It does help you to breathe. My
non-disabled daughter was a pro at the technique. I hope this information
helps you dloctor. I also hope that you will attend the next
international polio conference in 1999 in St. Louis. You will see all
kinds of non-invasive ventilation!
Valerie