Re: Info reguested re: Passey-Muir valve.
Carl Gobb ("cgobb(AT)ix.netcom.com"(AT)IX.NETCOM.COM)
Sun, 21 Sep 1997 11:10:20 -0700
blane n beckwith by way of James Lubin wrote:
>
> I have been considering getting a Passey-Muir to better
> facilitate speech. First, I would like to ask a couple of questions,
> hopefully to be answered by people who have experience with it.
>
> For the past 10-11 years, I have relied on a Shiley cuffless
> trach that allows me to talk "around" it because its uncuffed state
> allows air to pass by it and through my vocal cords. The problem with
> this system is because my vent breathes on a timed cycle (14
> breaths/min.), it forces me to pause when talking. As you might
> imagine, this is an impediment to my being able to carry on the flow of a
> conversation. People who don't understand this, or are just plain rude,
> often use these pauses to talk over me. It gets very frustrating!
>
> My first, and most important, question is, will the Passey-Muir
> valve help eliminate these pauses and make it easier for me to carry on a
> "normal" conversation? My other question is, is a Passey-Muir valve
> difficult to learn to use? I greatly appreciate anyones help. Thanks!
>
> Blane
> :-)
MY NAME IS CARL AND I HAVE USED MY PASSEY MUIR VALVE FOR 1-1/2 YEARS. IT
DEFINETLY HELPS WITH SPEECH. IT AFFECTS EVERYONE DIFFRENTLY. I HAVE MY
LP10 SET TO ASSIST CONTROL AND PEOPLE OVER THE PHONE DON'T KNOW I'M ON
VENT UNLESS I TELL THEM AND IF I DO TELL THEM THEY SAY THEY COULDNT EVEN
TELL. THE VALVE WAS HARD TO USE AT FIRST, BUT I AJUSTED WELL - AGAIN
EVERYONE IS DIFFERENT. HOPE THIS HELPS