thank you for the e mail.I filled out your questionaire.....but I AM NOT A
SPOUSE OF A SCI PERSON...NO....I AM THE MOTHER OF ONE!!!
It seemed in your research...kids with SCI and their parents SIMPLY ARE OF NO
INTEREST. Perhaps this should change.
My little daughter is a C-1 to C-4 quad since a car accident in 1995 - she
was only 4 when her life, her future, and her childhood was ripped from her.
YES, she is still alive, she has a future...(wonder what kind)...and she is
still a child (one that will never join in fun games, never sit in a "normal"
classroom", one that will NEVER go to a prom, etc. one heck of a "childhood,
right?) Perhaps it would be of SOME INTEREST to you and your University to
see how small children and their parents feel about THAT.
Mandy is now 7 yrs old. A REAL FIGHTER, supported by her family, loved and
pampered. She drives a power chair via chin switch, operates a computer via
sip'npuff, breathes via a ventilator, speaks via a speech valve, goes to the
bathroom via chatedrization.
Being a C-6 to C-7 quad is a tough call - and I admire your spunk to make
your doctorate, to keep on going, despite the obstacles. GREAT...KEEP
GOING!!!!!
Just...try to imagine a life as a C-1 quad....half machine/half human
being...JUST TRY TO SEE FOR ONE SECOND THE WORLD FROM THIS
PERSPECTIVE....C-1's in kids are rare...but they ARE HERE! PLEASE TRY TO
REMEMBER THEM...THEY HAVE FAMILIES, LIVES, HOPES TOO...
Thank you for your interest...just try to expand it a little....
Sincerely
Andrea skinner