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Annette,
Im 19 w/ D.muscular dystrophy & scholiosis 4yrs. now... use to use a Shiley
but it caused granular scared tissue in trachea. I now use Bivona silicon
trach., I love it !!!!!! You've probably heard there too soft... That person
more likely has never seen one! There not any weaker then most Suction Machine
tubing... Honestly rubber or plastic flanges aren't much dis-similar, being
non-poreis'breatheable" they all will sweet & cause some irritation unless your
alegeric to a material.............Theres always Sims-Portex trachs.
http://www.simsmed.com/respthpy.html
but I would SERIOUSLY try BIVONA "ASK for Scott Klelland sales rep.
1-800-348-6064 tell em' Cody Namesnik in Phoenix , Arizona sent you "
They will send sample........ also Inner canulas Im not sure about!!
I use to use inner canula /w Shiley,, but I don't think it big of deal.. Big
Hype!!! Bivona s are reusable , you get two you one as stand while other is
being cleaned.. I change mine every 3-4 wks. you could change em' sooner!!!!
E-mail me cody(AT)netzone.com
Cody Namesnik
http://www.netzone.com/~cody
PS Ill post photo of my trach.
annette wrote:
> I was wondering if any of you who use a trach could tell me kind you have
> and whether you are satisfied with it. Also I need to know the size and if
> it is cuffless or cuffed.
>
> To make a long and boring story short, my vent supplier has been helping me
> deal with Shiley company. I have been using Shiley trach since being
> trached and in September was switched to a cuffless. The type I have is a
> cuffless, size 6, and rather than the twist inner cannulas and cap it has
> prongs. The one I had beforehand was great. When capped, the button never
> seemed to wear out. The twist red caps seemed to shoot accross the room
> while I was talking, etc.
>
> Anyway, the past September I switched to A Shiley cuffless but for some
> reason there was air leakage between the inner cannula and the trach tube.
> (Not the trach and my stoma). We tried several Shiley 6's and they all did
> the same thing. My vent supplier sent them back to Shiley to be tested.
> The company has seen the problem I was having, but they don't know why. So
> at the momemt I have a Shiley 6 in my throat and the only way I can make a
> good seal with the inner cannula and trach is to put a rubber band on the
> inner cannula. I am no in any danger..but it is a pain in the butt.
>
> For weeks Shiley wouldn't send new trachs until they narrowed down the
> problem. They sent some new ones Monday but they have a rubber flange
> rather than the hard plastic..the rubber tends to break down my skin. My
> vent supplier did some calling and Shiley now has admitted that the size
> 6's cuffless are only made with the rubber flange. Rubber in my opinion is
> the worst thing to have against your skin. Moisture builds up and there is
> a good chance of skin break down. Do these company think? Or do they
> think vent individuals don't give a damn? Needless to say I am very
> frustrated.
>
> I think we are going to switch to another company..but my vent supplier is
> unfamilair with other trach companies. That is where I need your help
> guys. Let me know. It would be greatly appreciated. Also again, let me
> know what kind you have, size, etc.
>
> Thanks...
>
> Frustrated but breathing...
>
> Annette
> nete1(AT)midwest.net
-- Cody Namesnik http://www.netzone.com/~cody cody(AT)netzone.com
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Annette,
Im 19 w/ D.muscular dystrophy & scholiosis 4yrs. now... use to use a Shiley but it caused granular scared tissue in trachea. I now use Bivona silicon trach., I love it !!!!!! You've probably heard there too soft... That person more likely has never seen one! There not any weaker then most Suction Machine tubing... Honestly rubber or plastic flanges aren't much dis-similar, being non-poreis'breatheable" they all will sweet & cause some irritation unless your alegeric to a material.............Theres always Sims-Portex trachs. http://www.simsmed.com/respthpy.html
but I would SERIOUSLY try BIVONA "ASK for Scott Klelland sales rep. 1-800-348-6064 tell em' Cody Namesnik in Phoenix , Arizona sent you "They will send sample........ also Inner canulas Im not sure about!!
I use to use inner canula /w Shiley,, but I don't think it big of deal.. Big Hype!!! Bivona s are reusable , you get two you one as stand while other is being cleaned.. I change mine every 3-4 wks. you could change em' sooner!!!!E-mail me cody(AT)netzone.com
Cody Namesnik
http://www.netzone.com/~codyPS Ill post photo of my trach.
annette wrote:
I was wondering if any of you who use a trach could tell me kind you have
and whether you are satisfied with it. Also I need to know the size and if
it is cuffless or cuffed.To make a long and boring story short, my vent supplier has been helping me
deal with Shiley company. I have been using Shiley trach since being
trached and in September was switched to a cuffless. The type I have is a
cuffless, size 6, and rather than the twist inner cannulas and cap it has
prongs. The one I had beforehand was great. When capped, the button never
seemed to wear out. The twist red caps seemed to shoot accross the room
while I was talking, etc.Anyway, the past September I switched to A Shiley cuffless but for some
reason there was air leakage between the inner cannula and the trach tube.
(Not the trach and my stoma). We tried several Shiley 6's and they all did
the same thing. My vent supplier sent them back to Shiley to be tested.
The company has seen the problem I was having, but they don't know why. So
at the momemt I have a Shiley 6 in my throat and the only way I can make a
good seal with the inner cannula and trach is to put a rubber band on the
inner cannula. I am no in any danger..but it is a pain in the butt.For weeks Shiley wouldn't send new trachs until they narrowed down the
problem. They sent some new ones Monday but they have a rubber flange
rather than the hard plastic..the rubber tends to break down my skin. My
vent supplier did some calling and Shiley now has admitted that the size
6's cuffless are only made with the rubber flange. Rubber in my opinion is
the worst thing to have against your skin. Moisture builds up and there is
a good chance of skin break down. Do these company think? Or do they
think vent individuals don't give a damn? Needless to say I am very
frustrated.I think we are going to switch to another company..but my vent supplier is
unfamilair with other trach companies. That is where I need your help
guys. Let me know. It would be greatly appreciated. Also again, let me
know what kind you have, size, etc.Thanks...
Frustrated but breathing...
Annette
nete1(AT)midwest.net--
Cody Namesnik
http://www.netzone.com/~cody
cody(AT)netzone.com
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