Re: Trach Problems

annette (nete1(AT)midwest.net)
Wed, 19 Nov 1997 22:40:01 -0600

At 09:06 PM 11/19/97 -0700, you wrote:
>Hi Annette,
>
>I wrote to you about Bivona trachs........ I don't know if you visited My
Web
>Page or Not.? Http://www.netzone.com/~cody/prtime.htm ,,, Their Is a
picture
>of me & My Trachs !!! My Bivona trachs. are custom in which I mean custom
>curve, custom length specified my my Doc... Also they make my Flange
Pediatric
>Y style! Annette maybe that's what you might need, for comfort of course! I
>like it best, that's why I still get em' Y flange.. About being too soft,
You
>would have too be the "Linda Blair" The Exorcist "Movie"! to bend it shut! Im
>not saying this to be an As* Hole or A Jerk, "I don't Wanna get In A
Rant!" but
>Doctors have never had trachs or even have mental capacity to care how the
>patients feels, by rule of thumb most Doctors think That Patients w/ trachs
>are Paranoid Babies! So its Our jobs to TELL them "What The HELL WE WANT!"
>because we are the Ones that have to live with IT! But that's Just my
opinion!!
>
>annette wrote:
>
>> I am still dealing with some defective trachs. Since mid September I have
>> tried 5 Shiley size 6 cuffless trachs. Each one has had severe leakage
>> between the trach tube and the inner cannula. The only way it is sealed is
>> by using a rubber band. It is very frustrating. My medical supplier has
>> talked to Shiley several times. So called Quality Control at Shiley has
>> narrowed the problem to what I described. (So I am not crazy), But they
>> cannot figure out way it is happening.
>>
>> We have looked into other companies..but had little luck from some reason.
>> We did get a Simms Portex trach today. I haven't tried it because I not
>> sure I like it. Does any of you vent users have such a trach and tell me
>> what you think of it? It just looks different from what I am used to...
>>
>> I could use some help..I am becoming very very frustrated with this whole
>> situation.
>>
>> Thanks...
>> Annette Hanna
>> nete1(AT)midwest.net
>
>
>
>--
>Cody Namesnik
>http://www.netzone.com/~cody
>cody(AT)netzone.com
Cody..
I remember you writing me about Bivona trachs. My vent supplier was told
that (by who I don't know) that these particular trachs aren't made anymore.

I guess I am going to have to take matters in my own hand and deal with
this trach stuff. Cody...I will look at your web page..

Thanks..
annette