Re: Re: Can Anyone Help Olga?
Sagestr7 (Sagestr7(AT)aol.com)
Thu, 05 Mar 1998 17:08:16
dear olga,
i am 28 and have duchene. i understand your frustration. it has been quite a
strain on my family. is your son vent dependent. i have been vent dependent
for 5 years. this has been the most difficult transition. the services for
vent users is very limited. i encourage you to be prepard. talk to your
politicians and pray for a lawyer. i don't mean to scare you, but i don't want
your son placed in a nursing home. you need to find all the services
available. despite all my struggles i have gotten a college degree. i hope
this helps you. keep up your fight.
god bless, jeff