Phone call
Valerie Brew-Parrish (brew-parrish(AT)juno.com)
Thu, 7 May 1998 13:28:45 -0500
Hi Annette & everyone else interested in the Christopher Reeve
Foundation. What a morning I've had trying to ferret out the info all for
nothing! There is NO MONEY FOR BACK-UP VENTS! Here's the scoop: I called
the Reeve Foundation at 1-888-771-4673. Before you can take a breath,
you're bombarded with questions, "zip code," address. etc. I stopped the
woman and asked about the vents,& mentioned the conversation on Larry
King Tues. night. She knew nothing about such things. She said Reeve had
a web site (www.APACURE.COM) that lists lots of agencies that help
people. It doesn't. She referred me to their customer service #
1-800-225-0292. It's actually the American Paralysis Assoc. The Reeve
Foundation said only 3% of the funds go to quality of life issues not 30
like Reeve said on Larry King. I called APA, they too knew nothing about
vents. They referred me to the SCI Hotline at: 1-800-526-3456. They were
pleasant but they didn't know about any agency that helps people obtain
back-up vents. They will keep checking and call me back tomorrow. I went
to the Reeve website. The two organizations that received "quality of
life grants" are the National Organization on Disability($25,000) & the
National Family Caregivers Assoc.$25,000. (The founder's husband has M.S.
the wife felt he was a burden because of his disability so their
literature says. I pitched it in the trash) I then decided to call the
APA back to find out where all of the agencies were that supposedly
helped people. They were nice enough to FAX me the list: $25,000 to the
National Spinal Cord Injury Assoc. World T.E.A.M.'s Viet Nam Challenge.
$5,000 to Children Affected by Armed Conflict, N.Y. Therapeutic Riding, &
Shake-A-Leg. That's it! If you want to write to the Christopher Reeve
Foundation, the address is: PO Box 277, FDR Station, NY, NY 10150-0277
Perhaps the folks on this list should bombard the Reeve Foundation with
calls about back-up vents or write a letter to Superman & ask what in the
world he was talking about!
Val
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