Re: Fear of vent

MarkOhMan (marks99(AT)skypoint.com)
Sun, 15 Sep 1996 00:55:43 +0100

I'll tell you what my initial fear was. I was afraid of not being able
to speak. I wasn't able to for 3 weeks, in the hospital. I was able, at
times, to write down things and request that they did everything to
return that ability. That did happen, fortunately. Over the years, with
effort, and adaptations, it is greatly improved.

At first it was a cuffed trach, with a tiny tube attached to an outside
air source that stimulated vocal cords. Now it is cuffless, with a
Passey-Muir valve made for ventilator use. I'm able to shoot blowgun
darts. However, talking is the beneficial result. I haven't found a
practical use for darts yet ;-)

There is still one more fear. That is prolonged use of a vent. It is
beneficial, helping you remain more healthy and active. But, I've
watched two people go the other direction, and am watching another
friend struggle right now. He has a terminal condition that is not
directly associated with the respirator. I don't want to sound
discouraging. There are always odds to weigh, and every person is
different. I'm one of 3 who have greatly benefitted. My friend has had
have 25 years with a good life, on the respirator.
Mark