Reeve Foundation
Valerie Brew-Parrish (brew-parrish(AT)juno.com)
Wed, 6 May 1998 18:55:08 -0500
Annette,
Thanks for the number; that was the number given on Larry King. For all
of those people who wrote to me: I will call the 888 number on Thurs. and
get all the info I can. I feel so lucky to have two vents. Even though
one or the other is always konking out. I have given away two vents to a
friend who desperately needed it. I recently received a letter from Sen.
Lugar about back-up vents in response to the letter I wrote to him and
shared with everyone. He forwarded my letter to the honchos at medicare.
I hope it helps. I have informed my husband, if anything should happen
to me, I want my vents to go to either the Reeve Foundation or to GINI.
By the way, I am pretty sure Reeve uses the plv-100.
Val-Wishing her plv's would quit making such weird noises!
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