Good luck on your letter writing campaign and let me know what you find out
tomorrow regarding your phone call.
I have seen Christopher Reeve on a couple of interviews and the "super
cure" attitude has seemed to be a bit toned down. I hate to be a
pessimist...but maybe reality has set in with him. Live with what you have
and use it to it's potential. I believe in faith, and survival
intinct..but this "I will walk soon" "someday" aggrivates me.
I have to hand it to Mr. Reeve..he has made SCI and vent usuage subjects
that mainstream is now familiar with.
Annette
nete1(AT)midwest.net
At 06:55 PM 5/6/98 -0500, Valerie Brew-Parrish wrote:
>Annette,
>Thanks for the number; that was the number given on Larry King. For all
>of those people who wrote to me: I will call the 888 number on Thurs. and
>get all the info I can. I feel so lucky to have two vents. Even though
>one or the other is always konking out. I have given away two vents to a
>friend who desperately needed it. I recently received a letter from Sen.
>Lugar about back-up vents in response to the letter I wrote to him and
>shared with everyone. He forwarded my letter to the honchos at medicare.
>I hope it helps. I have informed my husband, if anything should happen
>to me, I want my vents to go to either the Reeve Foundation or to GINI.
>By the way, I am pretty sure Reeve uses the plv-100.
>Val-Wishing her plv's would quit making such weird noises!
>
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