Fw: MY FINAL VENT UPDATE - GOOD NEWS!

GINI (gini_intl(AT)email.msn.com)
Thu, 28 May 1998 12:06:32 -0700

Messages sorted by: [ date ][ thread ][ subject ][ author ]
Next message: Patricia Dowden: "Summer AAC course"
Previous message: Blane N Beckwith: "jfa(AT)telesys.tnet.com (Justice-For-All Moderator): Please Send"

Gazette International Networking Institute
(GINI)
coordinator of the International Polio Network
and the International Ventilator Users Network
4207 Lindell Boulevard #110
Saint Louis, MO (Missouri) 63108-2915 USA
314/534-0475 314/534-5070 fax
gini_intl(AT)msn.com
www.post-polio.org
-----Original Message-----
From: Bob Mauro - PeopleNet <mauro(AT)IDT.NET>
To: DISABILITY ADVOCATES <102103.2735(AT)compuserve.com>;
aasch(AT)sallie.wellesley.edu <aasch(AT)sallie.wellesley.edu>; acntlvng(AT)aol.com
<acntlvng(AT)aol.com>; adapt(AT)adapt-now.com <adapt(AT)adapt-now.com>;
adapt(AT)austin.com <adapt(AT)austin.com>; ANDERSON(AT)iris.RFMH.ORG
<ANDERSON(AT)iris.RFMH.ORG>; barbara_robertson(AT)tripod.net
<barbara_robertson(AT)tripod.net>; bferri(AT)sage.coe.uga.edu
<bferri(AT)sage.coe.uga.edu>; bfwaxman(AT)aol.com <bfwaxman(AT)aol.com>;
bogle(AT)erols.com <bogle(AT)erols.com>; cgill(AT)interaccess.com
<cgill(AT)interaccess.com>; ckmont(AT)aol.com <ckmont(AT)aol.com>;
dickson(AT)essential.org <dickson(AT)essential.org>; edgemag(AT)aol.com
<edgemag(AT)aol.com>; editor(AT)mainstream-mag.com <editor(AT)mainstream-mag.com>;
fredric_schroeder(AT)ed.gov <fredric_schroeder(AT)ed.gov>; gini_intl(AT)email.msn.com
<gini_intl(AT)email.msn.com>; gnarlybone(AT)aol.com <gnarlybone(AT)aol.com>;
greg(AT)onarollradio.com <greg(AT)onarollradio.com>; harilynr(AT)aol.com
<harilynr(AT)aol.com>; hellois(AT)juno.com <hellois(AT)juno.com>; impnixie(AT)charm.net
<impnixie(AT)charm.net>; jeniferjs(AT)aol.com <jeniferjs(AT)aol.com>; JFA(AT)MAILBOT.COM
<JFA(AT)MAILBOT.COM>; jik(AT)pacbell.net <jik(AT)pacbell.net>; judy_heumann(AT)ed.gov
<judy_heumann(AT)ed.gov>; kate_seelman(AT)ed.gov <kate_seelman(AT)ed.gov>;
laspina(AT)murray.fordham.edu <laspina(AT)murray.fordham.edu>; licil(AT)aol.com
<licil(AT)aol.com>; LONGMORE(AT)SFSU.EDU <LONGMORE(AT)SFSU.EDU>;
mark_johnson(AT)shepherd.org <mark_johnson(AT)shepherd.org>; marko(AT)well.com
<marko(AT)well.com>; mbristo(AT)aol.com <mbristo(AT)aol.com>; MGLIVL(AT)aol.com
<MGLIVL(AT)aol.com>; mslife(AT)tsbbs02.tnet.com <mslife(AT)tsbbs02.tnet.com>;
ncil(AT)tsbbs02.tnet.com <ncil(AT)tsbbs02.tnet.com>; neilj(AT)wellsfargo.com
<neilj(AT)wellsfargo.com>; panzarino(AT)aol.com <panzarino(AT)aol.com>;
patt(AT)squid.tram.com <patt(AT)squid.tram.com>; polionet(AT)polionet.org
<polionet(AT)polionet.org>; readenable(AT)aol.com <readenable(AT)aol.com>;
serfgb(AT)hofstra.edu <serfgb(AT)hofstra.edu>; sndrake(AT)syr.edu <sndrake(AT)syr.edu>;
stebrown(AT)juno.com <stebrown(AT)juno.com>; upvote(AT)aol.com <upvote(AT)aol.com>;
wid(AT)wid.org <wid(AT)wid.org>
Cc: advocacy(AT)maelstrom.stjohns.edu <advocacy(AT)maelstrom.stjohns.edu>;
c-palsy(AT)maelstrom.stjohns.edu <c-palsy(AT)maelstrom.stjohns.edu>;
disabled(AT)maelstrom.stjohns.edu <disabled(AT)maelstrom.stjohns.edu>;
mobility(AT)maelstrom.stjohns.edu <mobility(AT)maelstrom.stjohns.edu>;
pain-l(AT)maelstrom.stjohns.edu <pain-l(AT)maelstrom.stjohns.edu>;
polio(AT)maelstrom.stjohns.edu <polio(AT)maelstrom.stjohns.edu>;
teamwork(AT)maelstrom.stjohns.edu <teamwork(AT)maelstrom.stjohns.edu>
Date: Tuesday, May 26, 1998 1:46 PM
Subject: MY FINAL VENT UPDATE - GOOD NEWS!

>Just a final update on my vent situation. Finally, GOOD NEWS!
>Here's the letter I just wrote. All of you who have written
>letters for me, deserve my thanks too!
>
>Senator Alfonse D'Amato
>7 Penn Plaza
>NY NY 10001
>
>U.S. Rep. Carolyn McCarthy
>1 Fulton Ave.
>Hempstead, NY 11550
>
>The Honorable Kathleen Murray
>Room 325, Legislative Office Building
>Albany, NY 12248
>
>Dear Rep. McCarthy, Assembly Woman Murray, and Senator D'Amato:
>
>I just wanted to thank you all so much for your help in solving my
>second vent problem. According to Medicare's Congressional Rep.
>David N. Fiorini's letter of May 22, 1998, "Based on an individual
>consideration our Medicare Unit has approved the rental of the
>second ventilator for Mr. Mauro as long as medical necessity exists
>and Medicare coverage does not cease."
>
>That key sentence from Mr. Fiorini means the world to me. It
>removes the fear that I will lose my second vent. As you all know,
>that second vent has given me the mobility to be an independent,
>productive member of society. It gets me out of bed and into life.
>And, thanks to you all, I can now go on with my life without the
>fear of losing that second vent, and with it my mobility, and my
>independence.
>
>Thank you all!
>
>Sincerely,
>
>
>Robert Mauro
>
> Bob Mauro, Mauro(AT)Idt.Net
>--------------------------------------------------------------------------
>The PeopleNet DisAbility DateNet Check out my new book
>All About Love, Sex & Disability THE LANDSCAPE OF MY DISABILITY
>Stories, Articles, Poems, Books * Published by The Lemonade Factory *
> http://idt.net/~mauro http://idt.net/~mauro/books.html
> >>---> MOST BOOKS NOW ON SALE <---<<
> including my "Real Crip Sex" booklet
>For info send a SASE to: PeopleNet POB 897 Levittown NY 11756-0897
>--------------------------------------------------------------------------
>

Next message: Patricia Dowden: "Summer AAC course"
Previous message: Blane N Beckwith: "jfa(AT)telesys.tnet.com (Justice-For-All Moderator): Please Send"